Jack Jensen's Blog: Physical Therapy is Working!

Thursday, July 10, 2008

Physical Therapy is Working!

The physical therapist came for a visit today. It has only been 1 week since her initial assessment and she said that Jack is already making huge improvements. James works with him so much during the day and you can really tell.

We had a fun time tonight and I re-arranged Jack's play area. He had so much fun playing with everything like it was the first time. Here are some photos. He's such a happy little guy!

CHECK OUT THIS SPLIT! Jack can go from sitting to laying down now...in his own flexible way!

4 comments:

amy said...: He is so cute I just want to reach through my computer and pinch those cheeks! Ack! I can't handle that much cute!; July 10, 2008 at 11:31 PM
Anonymous said...: i do not know you, but have come across your blog through a co- worker of mine whose sweet sofia also had cdh. i just wanted to tell you that your little jack is about the cutest thing i have ever seen and such an amazing little boy. keep up your good work and your wonderful ways of encouraging all the other cdh parents!!
carrie in lenexa, ks; July 11, 2008 at 9:17 AM
Aep said...: I just love to see Jack's smile!! Such an expression!! Can't wait to see him crawling all over!! I remember when we had Marco's toy all neatly in one area and now it is all over as he is all over, but it is the best feeling ever!! You are doing great Jack!!! Way to GO!!
Hugs from Marco-your New England and Red Sox Pal!! :)
Hugs,
Ana; July 12, 2008 at 10:46 AM
Fer said...: I love to see Jack's pics, he's such a cutie and has the best smile!; July 15, 2008 at 1:21 PM

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Jack's Diagnosis and Recovery

At our 19 week ultrasound Jack was diagnosed with CDH. One week later James and I went to Children's National Medical Center in Washington, D.C. for more extensive analysis. We had a fetal MRI and saw that his hernia was on the left side (the most common) and at that time his liver was 'up' or in his chest. His heart was pushed to the right in his chest and he had a normal sized right lung and a very small left lung (about 1/5 the normal size). Overall his CDH was classified as severe with a Lung to Head (LHR) ratio of 0.8. His echocardiogram showed that his heart was beating strong and there was no underlying congenital heart defect. His amnio was also normal. The prognosis was 20-50% chance of survival at birth. The struggle we faced with this diagnosis was that there is little correlation between prenatal diagnostic test results and outcome at birth. Some babies with mild defects do poorly and some with severe defects pull through and do very well. All we could do was try to be optimistic and hope and pray that Jack would be a strong baby and fight hard. On August 20, 2007 John Verner Jensen "Jack" was born by C-section at The Johns Hopkins Hospital. He weighed 6 pounds 11 ounces and was 20 inches long. Within hours of birth he was placed on ECMO (heart-lung bypass). He had a 10 day run on ECMO and went to his hernia repair surgery on this machine. He was missing 90% of his left diaphragm, had his entire stomach, spleen, and parts of his small and large intestines and liver in his chest and he required a gortex patch. Jack came out of surgery off ECMO but with the cannulas still in place until later that night. He had a really hard night after surgery and we nearly lost him. We were later told his blood gases should have been unsurvivable and that it was pure will and not medicine that saved him. After 81 days in hospital we brought Jack home breathing room air and needing only an NG (naso-gastric) feeding tube. After 27 days home he reherniated and we had to go back for emergency surgery at Johns Hopkins. His awesome surgeons literally patched him back up and after another 16 days in hospital he returned home on Dec 21, 2007 - just in time for his first Christmas. Since then Jack has tackled his eating issues and is NG-tube free! He does not require any medication. We are extremely grateful for his incredible medical team and all his friends and family for their support, kind words, thoughts and prayers.

Jack's CarePage chronicles his day-to-day journey from diagnosis to approximately 6 months old (before we started blogging). See the link below.