Jack Jensen's Blog: She's here!

Thursday, July 23, 2009

She's here!

Announcing....

Anika Marie Jensen

6 pounds 8 ounces, 19 inches

Full head of jet black hair.

We're both doing great. I'll email more later. I'm wiped out!

Love
Vic
Sent via BlackBerry from T-Mobile

10 comments:

Liz Rich said...: She is beautiful! (and looks just like jack!)
Congratulations!
Liz; July 23, 2009 at 10:15 PM
Joe and Amy said...: Yay! Congrats! So glad everyone is good. She is beautiful and we can't wait to meet her.; July 23, 2009 at 10:39 PM
Anonymous said...: So beautiful. Got tears in my eyes-tears of joy! So so so happy for you. Can't wait to hear more. Rest and breath a sign of relief!; July 23, 2009 at 11:56 PM
*super dude and super dog* said...: CONGRATULATIONS!!! So glad to hear you are all doing well and I love not seeing a NICU isolette :) Can't wait for more pictures and the ones we've been waiting for...Jack meeting Anika! Love the name by the way.; July 24, 2009 at 2:25 AM
cvsaylor said...: Congrats! Looking forward to hearing how sibling introduction progresses.
-Charlotte (James & Nathaniel); July 24, 2009 at 8:23 AM
Unknown said...: She looks like James (poor kid) just kidding. She is beautiful. I hope you get some much needed rest. I can't wait to see more pictures.
Love,
Catherine; July 24, 2009 at 8:24 AM
Jill said...: Congrats! I'm so happy for all of you!; July 24, 2009 at 9:31 AM
Jen said...: Congratulations, I'm so happy for you guys!! She is just beautiful. Can't wait to see pics of Jack's first meeting. He will be such a cute big bro!! Love the name!; July 24, 2009 at 12:24 PM
Aep said...: Congratulations!!! She is beautiful and a beautiful name! Can't wait to see the siblings together!
Enjoy!!!; July 24, 2009 at 1:03 PM
Cindy said...: Congrats!!!; July 24, 2009 at 10:29 PM

Jack's Diagnosis and Recovery

At our 19 week ultrasound Jack was diagnosed with CDH. One week later James and I went to Children's National Medical Center in Washington, D.C. for more extensive analysis. We had a fetal MRI and saw that his hernia was on the left side (the most common) and at that time his liver was 'up' or in his chest. His heart was pushed to the right in his chest and he had a normal sized right lung and a very small left lung (about 1/5 the normal size). Overall his CDH was classified as severe with a Lung to Head (LHR) ratio of 0.8. His echocardiogram showed that his heart was beating strong and there was no underlying congenital heart defect. His amnio was also normal. The prognosis was 20-50% chance of survival at birth. The struggle we faced with this diagnosis was that there is little correlation between prenatal diagnostic test results and outcome at birth. Some babies with mild defects do poorly and some with severe defects pull through and do very well. All we could do was try to be optimistic and hope and pray that Jack would be a strong baby and fight hard. On August 20, 2007 John Verner Jensen "Jack" was born by C-section at The Johns Hopkins Hospital. He weighed 6 pounds 11 ounces and was 20 inches long. Within hours of birth he was placed on ECMO (heart-lung bypass). He had a 10 day run on ECMO and went to his hernia repair surgery on this machine. He was missing 90% of his left diaphragm, had his entire stomach, spleen, and parts of his small and large intestines and liver in his chest and he required a gortex patch. Jack came out of surgery off ECMO but with the cannulas still in place until later that night. He had a really hard night after surgery and we nearly lost him. We were later told his blood gases should have been unsurvivable and that it was pure will and not medicine that saved him. After 81 days in hospital we brought Jack home breathing room air and needing only an NG (naso-gastric) feeding tube. After 27 days home he reherniated and we had to go back for emergency surgery at Johns Hopkins. His awesome surgeons literally patched him back up and after another 16 days in hospital he returned home on Dec 21, 2007 - just in time for his first Christmas. Since then Jack has tackled his eating issues and is NG-tube free! He does not require any medication. We are extremely grateful for his incredible medical team and all his friends and family for their support, kind words, thoughts and prayers.

Jack's CarePage chronicles his day-to-day journey from diagnosis to approximately 6 months old (before we started blogging). See the link below.