Johns Hopkins Radiothon

Monday, July 19, 2010

Happy Summer!




I was just busy checking in on some of our CDH friends when I realized that Jack's blog is HORRIBLY out of date. I spruced it up a bit and updated some pictures.

This summer is going by so fast, but we're enjoying every moment. Jack will be 3 next month (his sister, Anika, will be 1 this week). Both kids are doing great. Jack has had a healthy summer and as a result he is pushing ahead with his learning, physical abilities and enjoying life as an 'almost' 3 year old. I feel like summer is the time we try to beef him up because he usually gets sick around November and it persists til spring. I'm afraid to weigh him since he seems to have gotten stuck at 28 pounds for the last year, but he looks good so I guess that's what matters. It is funny though that Jack and Anika are both in size 4 diapers! I hope he potty trains before she goes into size 5's!

It's funny how CDH seems to be something I can sometimes put in the back of my brain, but for whatever reasons likes to resurface from time to time. In the past 2 weeks I was contacted by 2 different docs that we formed close relationships with. They each had a new patient with a CDH diagnosis and wanted to know if they could pass along my contact info. I haven't heard from either of them yet - perhaps they're in that stage where you are sort of in denial and unsure of how you will proceed, if you will proceed. I wanted to say that if they find themselves reading this, please know that there are many other families out there who stood where you are now. Every CDH baby and pregnancy is different, but they are all hard. If there's anything good from this, know that there is an open and compassionate community of people out here who have tremendous knowledge and will hold your hand (so to speak) as you navigate through this. At the very least, you are in our thoughts and prayers.

1 comment:

emcrunk said...

Happy Birthday Jack!