City of Frederick, Maryland has declared CDH Awareness Day!

I wrote a letter to our mayor and received an email today stating that the City of Frederick would be "delighted" to recognize CDH Awareness Day on March 31st and the mayor is signing then framing the proclamation and it will be presented to me at City Hall. I'm really excited! I'm posting a photo of the beautiful State of Maryland Proclamation that I also received. I received it from the Governor's Office and I want to frame that as well. The state declared the entire MONTH for CDH Awareness.

I feel like when Jack was in the hospital we were his voice (that being said his docs were awesome). Now I feel like I can be a voice for awareness. Sometimes I feel like we're in the age of awareness being something that is just trendy...everyone wants their colored silicon bracelets and ribbons but I feel so passionately that the more we make CDH known the more babies will benefit. While no two babies respond to treatment the same way it is clear that excellent prenatal and neonatal care in a hospital equipped to deal with these delicate babies is imperative if they are to have any chance at all. Also, as a parent who never heard of CDH until my child was diagnosed I think it's important that doctors know about resources so parents can get support. So, for now I want to speak for these babies and help others going through this.

Here are 2 pics. 1 is the proclamation and the other is Jack being one cooool dude. His eyes were tearing when we had him out for a stroller ride from the bright sun so I got him some shades. He thinks he's pretty cool.

Vic