Johns Hopkins Radiothon

Monday, March 2, 2009

A dude needs his privacy....

Well, James and I finally decided to make Jack's blog private. I don't know why, but I agonized over this. I remember when Jack was diagnosed and all I wanted to do was read blogs of CDH babies. I know that Jack's blog has helped people feel hope. Then there is the issue of his privacy. He's getting older and over time so many people have found his blog - including many co-workers! It's weird when people I work with know all about our day to day activities. So, for those reasons I am making his blog private.

I am hoping that as Tracey, Gina and I get our Hopkins group running we can make a webpage or blog with all the important CDH info that I think I have on here and on their blogs.

Well, that's about it I guess. Jack is still in CT and has enjoyed being snowed in with his grandma & grandpa. We miss him so much! I think #2 is trying to get some attention in Jack's absence because she's been moving around like crazy the past 2 days!

Love
Vic

3 comments:

Hope for congenital diaphragmatic hernia said...

Vicki I totally understand your need for privacy. I am just thrilled that I can still follow your little man. He indeed has brought hope to many families and it will not stop anytime soon. I am so proud of you for participating in cdh awareness at Hopkins. You will all go so far!

~Terri

Gina said...

Great idea to make it private. I always think about what my co-workers think of me!! We will have to get together soon to plan our CDH group. We are seeing Abdullah tomorrow morning.

Fer said...

Thank you for inviting me to continue reading your blog. I am so gladJack's enjoying Catskill and that you are able to get some rest ;)